Wednesday, April 25, 2012

It may be the 25th but it's not Christmas

It has been one of those days.  Early this morning we got a call from the hospital about an appointment that we did not know we had. Some one dropped the ball and for got to call us.  A week ago there was some talk about putting in a catheter so we could drain the fluid from her abdomen here at home.  Sounds good except they whoever some one is for got to call and inform us.  The lady asked if we had had breakfast yet.  Since we had not she said she would check and see if it could still be done.  It could said to be there at 12:00.

We got checked in and they wanted to0 use the port from the chemo.  Good idea except they could not get blood to return through the port.  After about 30 minutes thy got it working and about 2:30 she was wheeled in to have the catheter put in.  Went real good.  Got back about 3:30. After recovery we got to leave about  5:00.  Home around 5:30.  Big day for such a simple procedure.

The hospice nurse will be out Friday to start training us on how to drain the fluid ourselves.  Doesn't look like it will be something we can't do.  The one main thing is to keep every thing sterile to keep things from getting infected.

PS  This catheter can remain as long as needed.

Glenn

Wednesday, April 18, 2012

18 April 2012

Well right now I am not a real happy camper.  I was writing and almost finished and was correcting some of my spelling and every thing disappeared.  Tough I guess .  Have to start over.  Now what did I write?

We had an appointment at the hospital today to have the fluid removed again.  They were able to remove 4.5 liters from her abdomen and 2.0 liters from her lungs.  We sorta got chastized  for waiting so long to call.  I don.t thing this was our fault this time.  We had called on Thursday and they didn't set it up until Wednesday.  I do think she will feel better by tomorrow.  Right now she has pain.  About Sunday she was in real pain.  She said on a scale of 1 to 10 she was about a 15.  Lots of pain pain pills takes care of that.

We are now signed up with Midland Hospice who wil take care of most things now prescriptions supplies.  They brought out 2 oxygen. bottles and an oxygen concentrator Monday.  Would have brought out a wheel chair but Vicki had already got us one.  Some woman was giving it away.  They can provide us with a lot of support that we will be needing.  They can send people out I think 3 times a week to help her bath and etc.  I have put a hand held shower hear in the show that helps her.  She does not use the bath tub anymore afraid she could not get out of fall. 

We do have ladies bringing in food a couple of times a week.  That helps a lot Gives her some different that I don't try to fix. I do breakfasst fairly good.  But I get lost after that.  Sherri was here last week and  Marcing is here now for about a week.  With her here  I can get out and do some things that I need to do.

Glenn





                                                                                                                                                                                                                                    






















Thursday, April 12, 2012

We had a CT scan on Monday then a Doctor's appointment on Tuesday.  Since Jody had not had any chemo for three weeks it was felt that it was the cancer and not the chemo that was causing her to be so weak and have no energy.  From this he assumed the chemo was not doing her any good and it was useless to continue it. 

As things now stand we will sign up hospice soon.  They will contact us in the next few days and tell us what they can do to help us.  Right now we don't need much help, but the time will come when we will need the help.  We have ladies from church bringing in food a couple of times a week.  I do have a problem fixing some things Jody will eat.  The chemo has messed up her taste.  Nothing tastes very good.  Salt is bad.  just a little it seams is to much. 

Sherri is coming tonight for the weekend and then on Tuesday Marcine is coming for about a week.  Then Ron is coming on the 27th.  We are lucky that Vicki lives reasonable close by.  About 75 miles so she has been coming often. 

We don't kinow all that the future holds but we will face it together.

We do go back to see the Doctor in 3 weeks.  May know more then.  Will had more to this as we know more.


Glenn

Wednesday, April 4, 2012

April 4th update

We had the fluid removed from Jody's abdomen today and they removed 3.8 liters.  Then they did a xray of her chest and found a lot of fluid there Removed 2.7 liters for a total of 6.5 liters.  They said this was about 14 pound of fluid they said.  Told her not to let it go so long again to weigh herself at the same time each day and when she had gained 6 pounds to call for an appointment

She went to take a nap as soon as we got home.  Hopeful she  will feel better when she wakes up.

That's all for now.  More next week.

Glenn

April 4th

Nothing good to report.  Last Tuesday we has a blood test and the platelets were way down.  18000.  Did not have chemo scheduled that day, but with the platelets being so low they  would not have given chemo any way.  Jody has and in very tired and weak.  When we talked to the Doctor yesterday with her being so weak and etc so no chemo. 

We do go to the hospital today to have fluid removed from her abdomen and possible the lungs.  Maybe this will help with the pain.  She is needing to take oxycodone quite regular now.

With Jody being so weak and just feeling terrible the Doctor said it was either the chemo or the cancer that is causing it.  By being off chemo for 3 weeks and no improvement in her well being the chemo is just not working.  We do go in Monday and Tuesday for a CT scan and to see the Doctor.  I think that will give us a real idea what is happening.

I did talk to hospice  and was told a long as we were getting chemo they  could not work with us We may not be getting chemo any more anyway. We will see.  Some ladies from church will start coming in a couple of times a week so that I can get  out  to buy groceries and do other things that must be done.  I just don't want to leave Jody for much more than going to the mail box.  Roger and Latisha mowed the lawn this week that helped and I was able to bet to Walmart.

It is do hard on Jody not being able to be up and do things, we will keep trying.

Roger and Latisha was here this past weekend .  Vicki and family for Easter.  Sherri will come on the 12th. Ron is coming on the 27th and Marcine ,Jody's sister after that. 

This is rambling, but that is me.

Glenn